“she will RISE with a spine of steel and a roar of thunder”…..and she did just that. Happy graduation day sis!!
We couldn’t be more proud of you and the amazing human being you’ve turned into. Continue to shine your light for all to see and always remember you’re so much more than what has happened to you.
Tag Archives: spinal fusion surgery
5 months post-op
5 months ago, we were anxiously waiting for 2 rods and 22 screws to be installed into WonderGIRL’s back by an amazing surgical staff at Seattle Children’s…..now here we are, pain-free and working on what a healthy attachment between Mama and daughter actually means and feels like after 7 years together.
A look back at her Spinal Fusion Surgery journey:
The lead up
The day of and time at Seattle Children’s
The aftermath
Snowy photo shoot from last week to highlight the rad-ness of her scar….
On the aftermath
OOF – I was NOT prepared for how hard it was going to be to support WonderGIRL’s recovery at home from this procedure. Up all night, trying to manage the excruciating pain and pain meds, and the needs of other members of our family was something I am sure newborn parents know the demands of, but we had never experienced.
Luckily, brother and Dad were great helps in keeping her brain distracted from the pain (shows she binged: Vampire Diaries (again), The New Girl, Julie and the Phantoms) and going on walks in the sunshine.
The care and exchanges that happened during this time were so powerful for WG to attach to me….something that hadn’t happened in 6 years of her living with us. Many do not know, but WG has suffered from reactive attachment disorder for most of our time together – meaning she very easily trusts and attaches to most humans, but hasn’t to us, her caregivers and especially me, her mother. Up until this point, she hasn’t come to me for help when needed, doesn’t miss me when away, and doesn’t actively seek out any affection or attention from me.
The bonds that happened during this recovery were just what she needed to feel tethered to me and on the first day I went back to work in-person, I got many text messages “missing me.” She even told me after work that she thought something was wrong with her because she “thought about me all day.” We got to explain that this was actually normal for children and similar to what a toddler feels when being dropped at childcare for the day. I am grateful for this surgery in giving us all chances to heal and move forward.
A few progression pics from her one-month follow up appointment and scar healing:
This is “Mocha”, WG’s Higgy Bear, a present we found for her on the day of her one-month check up. She named him Mocha, in honor of the winner of the nurse milkshake competition. We got her a monkey, since she was telling all nurses that she wanted to get a pet monkey when she grows up while under the influence of her pain meds.
Thank you all of your love and check-ins on her progress. We are still amazed at the freedom that this procedure has given her….and can’t wait to see her mobility and flexibility grow and grow in the months and years ahead.
On the surgery and recovery
After almost 8 hours in surgery, our surgeon came out to let me know that everything went smoothly with the procedure….and what an amazing procedure it is – 2 rods and 22 screws later!
I will say, WonderGIRL coming down from the anesthesia was filled with scary delusions and statements. I am glad I was assertive in asking I be there for this process (they usually don’t let parents in until the patient is all the way lucid) as her past abuse and trauma coming out would have been handled differently by nurses if I had not been there to assure her safety.
That day was also filled with some pretty cute and funny statements.
The following days in the hospital were HARD – she was emotional, in pain, and scared. With only me being there, I didn’t have anyone to “tag in” to the room to support her which was taxing at best. We are so grateful to the nurses in the hospital – they were amazing with WG and participated in her milkshake competitions with joy. `
As soon as WG was out of surgery, she was even asking for Nurse Amy (from the clinic) when barely lucid. Here is a pic with Nurse Amy 2 days after surgery:
Recovery from this surgery is intense – sitting up on day 1 and walking on day 2!! This video of her walking and the amazing nurse guiding her gives me all the proud mama feels….here is a peek at what her scar looks like on Day 3:
On day 4, WG had met all of her post-surgical goals and we got the okay to go home (after leaving with what felt like half the pharmacy at Children’s). As you can imagine, the 1.5 hour ride home with a spinal fusion surgical patient in the passenger seat was a nervous one for me, the driver. About halfway home, our moon roof window IMPLODED and sounded like a bomb went off on top of our car….anxiety times 100 for the rest of the drive home (also….so many pot holes in our neighborhood – sorry sis!).
We arrived home in tears but was quickly encouraged with an outpouring of love from our loved ones….
Next up – recovery at home and how it has impacted our relationships.
On the lead-up to Spinal Fusion Surgery
WonderGIRL was originally scheduled to have this Spinal Fusion Surgery in November of last year….due to the Children’s Hospital having some mold issues, the surgery was postponed (then Covid, then more mold….then we got a date)!
WG’s scoliosis had progressed to the point of needing surgery (see above x-ray) which you can imagine caused a huge amount of anxiety for her. Any major medical procedure is, of course, cause for anxiety, but for a childhood victim of sexual abuse – the vulnerability of being under anesthesia while strangers “fixed” your body really took a lot of counseling sessions and pep talks to even agree to the surgery. Even when she brought this fear up to her surgeon, the doctor’s response of “You won’t even remember it” did not appease the anxiety at all, instead, it multiplied the fear.
I documented the entire journey on my Instagram stories here if you want to peek – I’ll share a few highlights throughout my blog posts as well.
We had to go down to Seattle the day before for her Covid test and stayed in a hotel nearby….saying goodbye to little bro and Dad were hard (only 1 parent was allowed in the hospital due to Covid) but we tried to have a calm night before heading in early to her procedure.
She was so incredibly brave the morning of, amidst many tears…here she is waiting for the anesthesiologist to come in at 6am in the morning.
More to come on the surgery day and recovery….